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Is intensity of therapy important? Dr Derick T Wade, Professor in Neurological Rehabilitation, Oxford Centre for Enablement, Windmill Road, OXFORD OX3 7HE, UK Tel: +44-(0)1865-737310 Fax: +44-(0)1865-737309 email: [email protected] Why is intensity of therapy important? • The questions does rehabilitation alter outcome? how is rehabilitation quantified for funding? • are translated into is outcome related to the face-to-face time therapist spends with patient? how much face-to-face time did the therapist spend treating the patient? National Clinical Guideline for Stroke. 3rd edition. 2008 Recommendation 3.13.1.A • “Patients should undergo as much therapy appropriate to their needs as they are willing and able to tolerate, and in the early stages they should receive a minimum of 45 minutes daily of each therapy that is required. “ • No comment on time involved in any other activities. Content • What is rehabilitation? A process with many activities • What is therapy (treatment)? Any actions undertaken by therapists? Process of teaching a patient an activity? • What improves patient function? Time with the therapist practicing? Other therapist actions/other practice? Messages • Rehabilitation is not synonymous with therapy. • Therapists (team members) do much more than give therapy. • Rehabilitation process should be separated from rehabilitation actions: In research studies and papers When considering resources needed and used The clinical context • Patients present with problems they and/or others attribute to a health problem • Rehabilitation works within a holistic, biopsychosocial model of illness The holistic biopsychosocial model Pathology Impairment Abnormal organ structure or function; disease/damage Symptoms & signs experienced Impairments of function implied Personal context experience, expectation, attitude, choice, belief, disease label Temporal context stage in life; stage in illness Social context Expectations, attitudes, beliefs etc of others Participation Patient roles; Others’ roles Physical context Objects and structures: Peri-personal, general Activities Behaviour; goal-directed actions Illness is: • A dysfunction within the whole system Traditionally secondary to pathology (disease of or damage to an organ) Better considered secondary to mismatch between: • Demands made on person – By self (personal context), others (social context), environment (physical context), bodily needs • Capacity of person to maintain equilibrium in face of challenge – Capacity depends on whole person, and may be limited in many ways Medical approach • Medical care only considers pathology Diagnosis, cure/control, implications • Uses bio-medical model of illness Low attention to anything other than • Pathology • Somatic distress (pain) Not recognise other causes of illness Not consider importance of other factors Patient goals usually to: • Achieve satisfying social functions (roles) • Be able to respond and adapt to changing circumstances • Be free of emotional and somatic distress • Only concerned with pathology as one of many potential limiting factors Rehabilitation approach • Considers whole situation Using holistic biopsychosocial illness model • Focuses on Patient problems, wishes etc Patient activities in first instance • Goals are to Optimise social function, adaptability Minimise distress Rehabilitation: a problem-solving process Assessment to • Formulate (analyse and understand) situation • Determine potential goals and actions Goal setting to: • Set short-, medium-, and log-term goals Actions to: • Preserve patient safety and well-being (support) • Change situation (‘treatments’) Evaluation to: • Compare change against goals • Identify new/altered goals/actions Rehabilitation activities • Collecting & analysing data (assessment) • Setting goals • Undertaking actions to Preserve safety and well-being Alter situation / achieve goals • Monitor change and progress Transfer care to another service/patient Rehabilitation actions - 1 • Two types: support: care needed to maintain status quo • Often the major resource treatment: action expected to affect change • Treatments are multi-focal (i.e. affect several factors) Any level: • pathology, impairment, activities, participation Any context: • personal, physical, social Rehabilitation actions - 2 • Often prolonged in time • May be mutually inter-dependent Botulinum toxin and physiotherapy Giving wheelchair, adapting house and teaching how to use it • Order also may be important • Difficult to describe, classify or quantify Best by domain of WHO ICF? Treatment - pathology • Pathology Changing neural plasticity/ability to learn • Increase – e.g. ?use amphetamines • Decrease – e.g. avoid sedative and similar drugs Altering neural structures • Nerve growth factors etc • Also note Making the correct diagnosis (or new one) Giving or monitoring disease therapy Treatment - impairment • Treatments to alter impairments: Directly (e.g. pain, spasticity) Indirectly • Prostheses (replace a lost part/skill) • Orthoses (support a lost skill) • Note: impairments may change: Spontaneously Secondary to other treatments • E.g. increased activity Treatment - activities • To be discussed Treatment - participation • Most interventions to alter social participation are at other levels An important supra-ordinal goal for other goals • May: Help patient to adjust social role expectations Help person move out of sick role (being a patient) Role change is important “The kindest thing anyone could have done for me would have been to look me square in the eye and say this clearly: ‘Reynolds Price is dead. Who will you be now? Who can you be now and how can you get there double-time’” Reynolds Price. A whole new life: an illness and a healing. New York Atheneum 1994 Treatment – physical context • This involves altering the physical environment Peri-personal (clothing, small aids etc) Personal (wheelchairs etc) Within home (adaptations to stairs etc) Within other personal settings (e.g. workplace) Further afield (public transport etc) Treatment – social context • May wish to act on/alter attitudes, expectations, behaviours etc of: Personal others (family, friends, work colleagues) Others met (e.g. healthcare staff) • Also consider: Broader societal attitudes Laws, rights, responsibilities Culture of organisations & systems Treatment – personal context • May try to alter or influence: Expectations, beliefs, attitudes Self-efficacy, confidence etc • Involves actions such as: Providing information Cognitive behavioural therapy Contacting others in similar situation System analysis • Rehabilitation is a system Involves many people Includes many activities All spread over time • Systems Are, to an extent, resistant to ‘degradation’ • Someone else can take over But deliver an outcome that is greater than the sum of its parts At present • We know that the system works • We do not know Which bits are critical The extent to which one intervention may affect the outcome of another Changing activities • Depends primarily on learning: How to manage despite impairment • Techniques • Strategies etc Use of equipment What is possible How to overcome difficulties Activities (behaviour) • Learning (a behaviour) depends upon: Having adequate skills (i.e. impairment not too severe) Goals (motivation of patient) • Patient must see connection to wanted goals Confidence/self efficacy • Belief it can be achieved Feedback on performance Change in behaviour • This depends primarily on amount of practice: Repetition (100s of times) May secondarily alter impairment • E.g. increase fitness or strength • Also Feedback on achievement/failure Varying situations Roles of rehabilitation team • To optimise environment Structures People (staff, family) • To ensure practice is Safe Appropriate to abilities • To teach techniques, strategies etc • To encourage practice in different settings In a session a therapist may: Facilitate practice of an activity directly Provide support (emotional, social) Provide information, new knowledge Practice other activities, indirectly • E.g. communication Teach how to use equipment Teach others how to facilitate safe practice Organise actions by others Collect data, set goals etc Rehabilitation • Helps patient Select the most appropriate destination Travel along best pathway Make best selection at any junctions • Makes pathway safe & easy to follow Have emergency support network Therapists • Participate in team to Select and adjust pathway Provide safety net • Help patient Overcome particular obstacles safely Navigate parts of the pathway Learn new skills to manage travel Conclusions • Intensity of practice determines extent of change in specific, targeted activities Therapist has a role in facilitating safe practice • Therapists have many other tasks beyond practice • Relationship between rehabilitation input and outcome unclear Extent (quantity) probably low relationship Expertise (quality) likely to be more related Is intensity of therapy important? Dr Derick T Wade, Professor in Neurological Rehabilitation, Oxford Centre for Enablement, Windmill Road, OXFORD OX3 7HE, UK Tel: +44-(0)1865-737310 Fax: +44-(0)1865-737309 email: [email protected] *** NOT VERY IMPORTANT ***